Rett UK
Rett UK is the only UK charity which provides professional support to the parents, carers and professionals who live and work with children who have Rett Syndrome.
Address:
Rett Syndrome Association UK, Victory House, Chobham Street, Luton, LU1 3BS
Telephone number:
01582798911
Email:
support@rettuk.org
Website:
Rett UK website
Rett UK was founded in 1985 round a kitchen table by Yvonne Milne MBE. Since then we have grown to be the leading provider of information to not only families but also medical professionals new to the world of Rett syndrome.
The information and support we provide includes:
- what is Rett Syndrome
- family contact network
- telephone and online support
- advocacy
- advance care planning
- transition and sibling support
- bereavement support
Last modified on 05 November 2025
